The Sub-National Secure Data Environment is a national programme managed by NHS England involving eleven regions across England. The initiative is a wide-ranging socio-technical and innovation programme aimed at improving access to, and the use of health data in research and development (R&D.) The North East and North Cumbria (NENC) region was confirmed as one of the ‘Sub-national Secure Data Environment’ (SNSDE) regions in December 2022, with the initial programme running until 31st March 2025.
The programme has been running system engagement and public patient involvement (PPI) activities since January 2023 to a strategic plan. The major improvement programme provides an opportunity to create more effective, efficient and timely innovations, driving better health outcomes for the population.
To drive this change we require a Digital Stakeholder Management System to streamline and record all stakeholder engagement, projects, communication, feedback, issues and enquires. The system will be required to provide detailed demographics and mapping tools alongside an overview of the recorded interactions which will enable and support the NENC SDE Programme team to build relationships and deliver better outcomes.
Health Innovation North East and North CumbriaNorth EastWAC-58752
In July 2022 an amendment was made to then Health & Social Care Act that all regulated health and care providers must provide mandatory learning disability autism awareness training to their whole workforce that is appropriate to their role. A Code of Practice is yet to be published by the Government, but it is expected to say this training needs to be co-developed and co-delivered with a experts of lived experience of autism and learning disability. The national NHSE response has been the development of the Oliver McGowan Mandatory Training. This is a 2 tier programme and is to be delivered every 3 years.
The North East North Cumbria has Boost as their learning academy which is a centralised offer across the NENC ICS workforce for people to access their training requirements. We expect Boost will hold all mandatory learning disability and autism awareness training that meets the requirements of the Health & Social Care Act and Code of Practice that is available across NENC.
We are looking for a team to build onto the existing Learning Academy digital platform that meets the requirements outlines in the Standards and Service Specification within the Invitation to Quote document.
Health Innovation North East and North CumbriaNorth EastWAC-61557
Funding was received by Health Innovation North East and North Cumbria (HI NENC) in April 2021 to implement and lead on the national Child Parent Screening Programme. This was in order to support the ambition set out in the NHS Long Term Plan to improve the identification of Familial Hypercholesterolaemia (FH) to 25% by 2025.
Previously, HI NENC had embarked on a programme of work to search primary care records for those at risk of FH. Alone this was unlikely to achieve the NHS LTP ambition - the addition of a child-parent screening (CPS) programme was introduced to help increase identification of FH patients and their families.
FH, an autosomal dominant inherited disorder, is a common cause of ischaemic cardiovascular disease in young adult life. There are about 200,000 undiagnosed people with FH in the UK. Identifying affected individuals before the onset of disease is important so diet and lifestyle modifications can be made and medication initiated as appropriate.
As each affected child will have one affected parent, testing children provides a means of identifying and treating both child and parent together in a systematic manner.
This project aims to evaluate the effectiveness of the implementation of the child parent screening service as well as the impact it has had. A mixed methods approach will be used drawing on a variety of techniques.
Health Innovation North East and North CumbriaNorth EastWAC-65435
The requirement is for the Supplier to provide a fully managed IT support service to enable Health Innovation Network NENC (referred to as 'HINENC') to deliver its core business services. The current support contract comes to an end on the 1st February 2025 and services approximately 80 users / devices during office hours Monday to Friday.
Objectives
The supplier will provide seamless transition of IT support from the current incumbent, ensuring that there is minimal disruption to HINENC business operations.
Once the initial transfer is complete, the supplier will deliver HINENC with a fully managed IT support service focussing on the following:
Improved Service Delivery: Assist HINENC to ensure timely and effective delivery of HINENC's core business services, facilitating IT-enabled improvements.
Optimised Resource Management: Efficiently manage HINENC resources to reduce operational costs.
Strong Compliance and Security: Adhere to all relevant regulations and standards, with industry-leading protection of the HINENC's IT configuration and information assets.
Health Innovation North East and North CumbriaNorth EastWAC-30132
The Sub-National Secure Data Environment is a national programme managed by NHS England involving eleven regions across England. The initiative is a wide-ranging socio-technical and innovation programme aimed at improving access to, and the use of health data in research and development (R&D.) The North East and North Cumbria (NENC) region was confirmed as one of the 'Sub-national Secure Data Environment' (SNSDE) regions in December 2022, with the initial programme running until 31st March 2025.
Health Innovation North East and North CumbriaNorth EastWAC-118821
Innovation pipeline data, plus outcome and impact data, is currently collected using different tools, stored differently, and has various definitions across partner organisations. This means that understanding the pipeline is complicated and needs to be improved.
The Innovation, Research, Life Sciences and Transformation Strategy (IRLSS) group has ambitions to improve its horizon scanning and demand signalling (HS & DS) capability and to align different and disparate data sources better to enable data-driven decision-making. We are aiming to align these different datasets with a view to creating an innovation repository. The repository would combine data from the Health Innovation organisations (HI's), the NHS Innovation Service and other sources (including awards, such as the NHS Innovation Accelerator (NIA)) to provide intelligence about innovations moving along the innovation pathway and their impact. For obvious reasons, we are not necessarily looking to create a single data source from the current disparate sources. Still, we need to align our datasets pragmatically to give a more coherent view of the market in a particular area, accessed more easily. The resulting data views will be used to support HS & DS, to identify technologies that do not offer additional benefits, and recognise where there are barriers to development and where there are issues with progress along the pipeline which could influence policy. This information will also support the NHS in understanding, prioritising, and preparing for incoming innovations.
Health Innovation North East and North CumbriaNorth EastWAC-126823